As with most parents, we seem to get lost in our children. We forget to take care of Momma. Momma makes the house "go" and a broken Momma isn't good for anyone. So here is a little post about how I've started taking care of Momma. First I decided that I did need to do some elimination dieting. I realized that yes, it was a PIA. Yes, it was more expensive on the food budget, but YES, it was what I needed. The bottom line for me was that if any one else in my household needed an elimination diet on even the small chance it might help them with something...even something minor, I would do it...so why wasn't I doing it for me? Why wasn't I doing it when I knew it had the potential to help my significant chronic illness in a major way? So I'm doing it. I started Oct 17th and I'm pleased to report that I've followed a very strict Gluten Free diet, with a slightly less strict, but still "eliminated" Dairy Free and Sugar Free Diet. I practiced that till the day before Thanksgiving when my name came up on the waiting list at the "local" (hour away) Functional Medicine Dr, and I was able to get in with him. He also eliminated Corn from my diet and asked me to consider Soy as well. I'm considering soy, and finishing all the corn containing, but otherwise gluten free items I have in short order that I might also eat Corn Free. He talked with me a lot. He made a lot of sense, and I liked his thought process and patient relationship process a lot. He started me on a pro-biotic, some liquid supplements, and some medical food. Medical food supplements taste like chalk. They say on the outside that that "shake mix" is flavored like Chocolate Orange, but it's really Chalk flavored. I'm currently slurping down a large shake that is has fruit smoothie mix, blueberries, tart cherry juice, and a big scoop of chalk. Now I'm stuck with a large glass of chalk to drink because I mixed it with so many things it made a huge glass. This is expensive chalk though, so I'm drinking it, but I won't make this mistake again.
Over all...I'm feeling better. I've made some progress in coming of some pain meds, and immune modification drugs. I no longer take injectable medications, or Vicoden. I have reduced my Tylenol to 1X per day instead of twice. I'm back down to 5MG of Prednisone instead of 40. I'm going to stick to this for the next month until I see him again, and then we'll talk about coming off the Prednisone and maybe reducing some of Advil doses. I'm still sore in the AM, and in the evening as I get ready for bed. Warm baths and showers help. I want to get off all this junk, but more importantly, I wanted to find a Doctor who believed I could get better. He really does. He said so many things that were spot on about my medical history starting when I was very young...all things I had not mentioned in my medical history. Quite amazing.
My immune system did not become this damaged overnight. It will not repair overnight either. We may have a long road in pin pointing all the things that are preventing my immune system from functioning correctly, but we will. I can walk a long road if I see a light at the end, and I have a light.
I'll update you all when I think of it, but send me a message if you have any questions.